Project Shui for Tay-Sachs


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registered respiratory therapist said:   January 20, 2017 6:20 pm PST
I have to let you know that Atrovent (ipratropium bromide) does not dry secretions in the lungs. However, it will inhibit the production of secretions from mucous glands. There is a difference.

betethome said:   July 23, 2011 2:33 am PST
I like, bookmarked bet et home

ranikkijamesx9 said:   June 16, 2011 12:49 am PST
Amazing website from Audrey Grennay

Mike Tafelsky said:   November 7, 2010 7:38 am PST
I wasn't sure how else to contact you. My daughter has recently been diagnosed with juvenille tay-sachs. I saw on your website that you have used a medication called zavesca and would like to get more informtion on this from you. Please feel free to have your mom or dad contact us about this. God bless your little sister! Thank you for your time, Mike Tafelsky Michaella's Father

Chris and Michelle Ruppert said:   November 7, 2010 2:43 am PST
Eric-Hello! How wonderful to see Rachaeli is 8 yrs. old. My husband and I meet your family several yrs. ago at one of the Tay-Sachs conf., it was in FL. Our daughter Rachel had Tay-Sachs, now she is in heaven smiling, laughing and playing. We only went to that one conf. We couldn't bare to come back. It was just to much to see all the sick kids. We belong to NTSAD and I always read the newsletter. I check out to see how the beautiful kids we meet are doing and Rachaeli is one of them. I have a picture of Rachaeli and Rachel together. What wonderful news to see she turned 8 !!!!!!!!!! Your family is such an inspiration, and Rachaeli turning 8 means your doing a great job caring for her. I know as a parent it's hard to know if your doing all you can medically and caring for them to the best of the ability we have. We did all we could to keep Rachel healthy, but God called her home shortly after her 5 th birthday. We are grateful to have had her here as long as we did. God was good to us. Take care and we'll say a prayer of thanksgiving for all of gods graces for Rachaeli, and her family on her 8th. birthday!!! The Ruppert Family

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