Project Shui for Tay-Sachs

What is Project Shui?

Contents
*Video or Pictures of Tay-Sachs

Project Shui Home Page
   *Welcome From Shui
   What is the Cure Tay-Sachs Foundation?
   How Close are we to a Cure?
   *Rachaeli's Friends
   Sign up for Updates
*Bar Mitzvah Video Invite
What is Project Shui?
   Thank You From Shui
   Internet Ads&Marketing
What is Shavuot?
   Shavuot & Shui's Sister
What is Tay-Sachs?
   Tay-Sachs Diagnosis:
      Part I
      Part II
   Genetics Made Fun
      *Lysosomes The Movie
    *Genetics 101 Video
      Narrated by Alec Baldwin
   Genetics 101 Article
*Inspirational Videos
   *Beautiful Faces of Lysosomal
   *Tay-Sachs Talk
   *Connor Hopf Cure Tay-Sachs
   *2010 Faces of Tay-Sachs
   *My Soul Sister-Molly Grace
   *Our Star Dakota
   *Rachaeli's Song of Love
   *Elise-A Child Living with Tay-Sachs
   *Last Laugh
   *Meet Gavin
Tay-Sachs in the Media
   *Glee Sectionals
   *Grey's Anatomy Sweet Surrender
   *Law & Order SVU MERCY
   *21 Below Documentary
Legal & Financial Issues
   What is Wrongful Life?
   Right to Live in the United Kingdom
   How to Pay Medical Bills?
   Social Security Disability
   CHIPRA-Insurance for Kids
   Medicaid Waiver Programs
   Katie Beckett Medicaid
   Who is Katie Beckett?
   Why Do We Need The
      Katie Beckett Waiver?
   Eligibility for Katie Beckett
   Katie Beckett in Georgia
   Katie Beckett's Going Home
   (from People Magazine 1981)
Treatment or Cure
   Canavan Pioneers
   *Gene Therapy
   Jacob Sheep Sensation
   Article in Forward-Jacob Sheep
   *Stem Cell Transplants
   Enzyme Replacement
   Substrate Inhibitors
   Should I Try Zavesca?
   Letter for Insurance
      Approval for Zavesca
   Chaperone Therapy
In-Home Medical Care
   Home Health Care
   Respiratory/Secretions
   Coping Strategies
   Coping with Humor w/ Shui's Dad
Rachaeli's Story
   Shocked by Tay-Sachs Article
The Project Shui Family
   Mommy's Online Journal
   Abba's Online Journal
   Shui's Fun Pages
Guestbook
Sitemap

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What is Project Shui?
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This following is a summary of the above audio:

How You Can Help Project Shui Without Spending a Dime

Project Shui is not just a Bar Mitzvah project.
It is not just a fund-raiser.
It is not just a cute way to raise awareness for Tay-Sachs disease.
It does not end on Shui's Bar Mitzvah.
It will be an ongoing project. The website is not nearly complete and it will continue to be updated.

One goal of Project Shui is to pass this website and its message along to as many people around the globe as possible. Another goal is to raise as much money as possible for Tay-Sachs gene therapy research through direct donations. A third goal is for the website to make money for the CTSF passively - through online advertising with Google Adwords, Kontera, and other advertisers that work with these two.

Some ways you can help Project Shui reach these goals

1. Link www.projectshui.com to your website and write a blurb about us on your site.

2. Submit short articles to one or all of the numerous article-based websites (such as Ezine, Valuable Content...there are tons of them) and link projectshui.com to the article. The topics of the articles can be directly related to Tay-Sachs or a critique of this project. They can also be on any number of other topics such as parenting, education, developmental disabilities, childhood illnesses, therapy equipment, physical/occupational therapy, non-profit organizations, universal health care, Americans with Disabilities, death panels, medical breakthroughs, pharmacology, religion, psychosocial stressors... The list can go on and on.

This is helpful because these article-based websites distribute their articles and their links. The more links to our website the better our ranking will be for the best advertisements. All the money brought in by advertisements will go to the Cure Tay-Sachs Foundation.

3. Mention us on your blog and provide our link.

4. Write about us on your online journal and include our link.

5. Make a YouTube video about Tay-Sachs, Project Shui, or any of the topics listed in #2. Include us in the video, as well as in the video's "keywords" and "description". Then "share" your video with your friends on facebook, twitter, myspace, etc.

6. Mention us on Facebook and send friends our link.

7. Tweet about us on Twitter and provide our link.

8. Send our webpage or our link to your friends, co-workers, neighbors, and other associates, and include a few kind words about us.

9. Write about Tay-Sachs or Project Shui on a HubPage or on StumbleUpon and link back to www.projectshui.com.

10. If you have any other methods to transmit our message and our website, go for it!

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What is Project Shui?